assistance for people with genetic diseases

I’m 31 and I have a disease called cvid that cropped up last year along with bronchiectasis also autoimmune problems. I am a hard worker, but due to my disease I am unable to work. I am an industrial electrician and have been for last 8 years. I have a family of four and an income of roughly 1600 a month and can’t get hardly any assistance because we make to much my money flow is about to stop. And my fiancée makes about two hundred every two weeks. I am currently working on getting disability, waiting on hearing. the funny part is my disease qualifies me for instant approval yet have been denied twice. I guess what I’m saying is make it easier for people in my situation to get help. I’m on the verge of loosing everything I’ve worked so hard for.